I wrote this three years ago just after my last stay on the oncology ward.
On Friday evening when I started feeling ill I thought it was due to the cancer treatment I had earlier in the day. The side effects of the targeted therapy (herceptin) I’m having are not as severe as the side effects of chemotherapy, but it still causes side effects.
On Saturday I woke up feeling better but with what seemed to be the start of a cold. Later on I noticed my throat was showing signs of an infection so I made an appointment to see the GP first thing on Monday morning.
I took painkillers and went to bed early that evening but woke up just before midnight. I was in a lot more pain down my back and legs than usual. My ears and throat were very, very sore. I took my temperature. It was very high. I fell asleep again before waking again a few minutes later coughing and struggling to catch my breath. I decided to call 111, the out of hours doctors service, for advice.
I was triaged and put through to a doctor almost straight away who decided I needed to be seen by a local doctor. I was told I would receive a call back within the hour to arrange this. An hour later they called to tell me that a doctor would call soon. I fell asleep again. Next time I woke up I was shaking uncontrollably. I felt a bit confused and struggled to speak clearly. My husband and son were very worried.
As I still hadn’t had a call back from the out of hours service we decided to call the dedicated oncology helpline. The triage nurse said I needed to go to the oncology ward to be triaged as soon as possible. This was the right decision as the out of hours doctor didn’t call until the morning. My husband got me and my overnight bag into the car, we dropped our son off at my parents and made our way to hospital. During chemotherapy I had to call the helpline and go in on numerous occasions with high fevers, usually in the middle of the night, and was diagnosed with severe neutropenia twice.
The nurse confirmed my temperature was high and I had a high pulse rate and had high blood pressure. Usually I have a low pulse rate and normal blood pressure. I had blood tests and was given intravenous antibiotics. I then waited for the blood test results and to see a doctor.
I drifted in and out of sleep and lost all track of time. After what seemed like hours I saw a doctor. She arranged pain relief, a chest x-ray and a urine test, both of which were clear, and decided I should wait to see the duty consultant. The consultant decided I should stay in for intravenous (iv) antibiotics as the blood test results showed I was really unwell. I was moved to a bed on the ward for more iv antibiotics and monitoring.
About 24 hours later I noticed that I was starting to feel better and soon I was asking to to be discharged. I am continuing with oral antibiotics at home and I am slowly recovering.
I’ve had another reminder of my frailty, there is a lot I can’t control.
I’ve been reflecting on my stay, I am feeling thankful for the kindness of the doctors, nurses and other health care workers, as well as all the other people who work there. I’ve also been thinking of family and friends and others whose care, kindness and support encourages me to keep going.
I’ve also been thinking about the other patients I met this weekend and during previous admissions. We are different ages, have different backgrounds, different beliefs, different circumstances, different skills etc but all of us are being treated for cancer. I have noticed that those of us who have had a cancer diagnosis often bond very quickly when we meet. Often no words are necessary. There is care, respect and understanding.
Nobody wants to be in hospital but thinking of my experiences this time I am thankful for the other people. I am especially thankful for the old lady who was moved into the bed next to me. When the lights were switched off and the doors were closed for our afternoon nap time, she turned to me with a twinkle in her eye and said ‘let’s party’!